My ups and downs, trials and tribulations with this damned disorder.
RSD is not an illness for a poor person because of all the extra care you must take to “feel” or “act” normal. Along with my RSD I also have Fibromyalgia which complicates my RSD pain. Stress exacerbates the RSD pain to the point I learned to stay out of stressful situations which is not easy and makes me feel like a burden to others.
Learning to live with RSD you need to find your comfort zone and what helps you keep your stress level low. RSD is a difficult illness to regulate because you have to stay active to keep your pain level down but you also cannot over do your activity because that increases your pain. I find comfort and peace in keeping up with hobbies I enjoy and I find it an import part of my therapy. I enjoy helping others and animals and I find alot of comfort in that.
Will I ever get into remission fully? I doubt it, I don’t have the resources to do so. Will my RSD get worse? Only time will tell. I do everything humanly possible to avoid that, but society dictates my RSD pain levels and unfortuanately for low income classes that is just the way it is. RSD for me has become a way of life and not a disabilty or an illness, it is just part of me now and I have to adjust to it and so does my family. It isn’t easy to always deal with but it is there for life and I have to make the most of it so I do.
So the next time you hear of someone saying they have RSD and are in pain, do not tell them it is all in their head, or suck it up, or you whine to much. Embrace their aches and pains, have empathy and be grateful you have not been struck with this disease. This is ongoing pain that makes you tired, depressed, takes away the life you once enjoyed and replaces it with a life you, yourself would not want to deal with.