The Book Written by Jeffrey N. Gingold(about Multiple Sclerosis)ms
Facing the Cognitive Challenge of Multiple Sclerosis(MS). His phrases and my thoughts.
Image via Wikipedia
1. The challenges of disability are not always understood by others.
This is why I don’t tell no one, because I have to explain or maybe I don’t want them to know.
2. Disability can cause frustration with daily life.
So true, as time goes. You can’t do the things like you use too. Things take you longer to do it.
3. The early symptoms of MS may be subtle and confusing.
Yes, because I ask the question is I’m going to be cripple? I knew nothing about it.
4. Sometimes even doctors have difficulty recognizing MS.
You have to take numerous tests for the doctor to fully understand
5. Difficulties with vision are a common systom in MS.
Sometimes, because everything become blurry for seconds or days. But will go back to normal.
Image via Wikipedia
6. Magnetic resonance imaging(MRI) is often used to view MS-related lesions in the brain. Yes
7. Anger and denial are possible reactions to receiving an MS diagnosis.
I was crush asking why me? I ask my mom and dad what did they do? For me to be this sick. I blame everybody.
8. Support is critical for people with MS.
Yes, because I fell into a deep depression stage. Wandering what’s going to happen to me. I couldn’t face reality.
9. Denial is a reoccurring reactiuon in dealing with a Diagnosis of MS.
I don’t deny MS, I was only stun, when I first receive the news.
10. The symptoms of MS include physical and menta fatigue. It sneak up on you unexpectly.
11. Many people with MS are adversely affected by vision difficulties, heat, and humidity, so adjust the lights and keep cool.
12. MS is a progressive disease with symptoms that are different for each person. True
13. About half of all MS patients are affected by cognitive problems many of them left undiagnosed.
True, because it’s a lot going on with me now. My doctor don’t know what it is until I take another MRI.
14. Moving towards acceptance is part of dealing with an MS diagnosis.
You don’t have a choice but to live with it. It is what it is.
15. Understanding the causes of MS-related symptoms can enable a person to take constructive action.
Yes, I guess but it’s still unanswered question.
16. It’s easier to deal with anger when you recognize what triggers it. Yes
17. Cognitive difficulties are commonly reported by MS patients.
18. Medication can slow the progression of MS and lessen the severity of symptoms.
Yes, maybe slow it down. Why not cure it.
19. MS medications can be tools of action and hope.
Yes, and No, because as time goes things will change in your life.
20. MS medication can have varying side effects but as with other drugs each person’s response will be different. True
21. Accepting medication for MS can be empowering. Yes, because it’s needles
22. Painkillers can be used to lessen the side effects of MS medication.
Aleve is the only painkillers that helps me.
23. Multiple Sclerosis is often require a continuing realignment of priorities.
Why? Cause I don’t understand.
24. It’s important to stick with a therapy program but avoid pushing yourself to exhaustion,
I push myself all the times to get it done.
25. The mental disorientation of MS can be frightening, but it is best to remain calm until it passes.
That’s easy said than done.
26. Research suggests that there is no permanent memory loss in MS, although brain lessions sometimes cause a slow-down of mental processing, delaying retrieval of information.
27. The mental lapses of MS are unpredictable and can occur without any obvious catalyst.
28. The cognitive challenges of MS can include no immediately recognizing familiar faces and places.
29. Honest communication is the best way to get through difficult situations. Sometimes
30. Laughter bring people together. True
31. People with MS can have their energy and ability to concentrate depleted with little or no notice.
Yes, but sometimes it’s noticeable.
32. The medications used for Alzheimer’s may also have the potential to improve memory in people with MS. Yes and No.
33. That which remains hidden will continue to cause suffering.
True, because no one see or fell your pain.
34. People with MS sometimes show no obvious symptoms; they look “just fine” True
35. Through education multiple sclerosis can be fought face-to-face. Not really
In Summation
A person with multiple sclerosis is more than just a person with disability.
Find joy in subtle pleasures and live vibrantly. It’s hard sometimes
My theory is why not find medication to cure it all together.
This book inspires me because I live with this everday.
Liked it
Catrina Markus | Nov 2, 2009 | Reply
It is sad. I have a learning disability meaning I have trouble following directions and my handwriting is something else. I’m smart and talent, but my learning disability makes it hard to do things.
Thankyou for sharing.
Themax | Nov 2, 2009 | Reply
Nice article about MS !!
We need to know more about this type of diseases.
Thanks keep sharing
Teves | Nov 2, 2009 | Reply
Good stuff….
ken bultman | Nov 2, 2009 | Reply
Ceegirl. I can’t possibly say I understand but I have twoTriond friends just like you who I love so much I can’t choose between them. Now, I have three. Let me tell you about another friend of mine. She’s the most beautiful newspaper reporter in my home town. She’s a wife, a mother of three and she walks with a cane.
You keep your chin up.
Jenny Heart | Nov 2, 2009 | Reply
Accepting the new normal can be fulfilling and helpful. Great one!
deep blue | Nov 2, 2009 | Reply
Interesting. MS is really a hard challenge for anyone afflicted except for Bill Gates who made the most of it. BTW, I knew of one man who kept his prestige despite affected by a related disease, Amyotropic Lateral Sclerosis (ALS). Stephen W. Hawking had been well at home with it.
lindalulu | Nov 2, 2009 | Reply
Great article and keep smiling…
wanjiku | Nov 2, 2009 | Reply
Thanks for sharing your challenge. Your reflections helped me empathise with you and what you must deal with on a daily basis.
Take courage and know that God is in control and He will see you through this journey if you let Him.
Shirley Shuler | Nov 2, 2009 | Reply
Great article, keep the faith, there are many things we can not understand but we must trust God’s wisdom and be guided safely by his hand.
norah13 | Nov 2, 2009 | Reply
great article…it is difficult to cope with such situations..thanks for sharing
Eunice Tan | Nov 2, 2009 | Reply
Nice article. I only know MS when a TV presenter in my country suffers this disease and I think it is really horrible.
SharifaMcFarlane | Nov 2, 2009 | Reply
Thanks for sharing this.
I didn’t know much about MS before.
ReggieLutz | Nov 3, 2009 | Reply
thanks for sharing this
crucisis | Nov 3, 2009 | Reply
Good information.
Its good you are sharing this. I lost a cousin to Multiple sclerosis. Its sad to see how the disease acts in the last stages. Heart-breaking. We need more awareness about such ailments.
orlandoJP | Nov 3, 2009 | Reply
Good information,
I got two cousins with MS they are both sisters.
Petalm | Nov 3, 2009 | Reply
Sorry for anyone going through this.
Diverseblogger | Nov 3, 2009 | Reply
Very nice article! Learn something new every day. Thanks for sharing
Christine Ramsay | Nov 3, 2009 | Reply
This is a really hard challenge for you to go through. I am glad you are finding some comfort in the book. I like the way you have added your own thoughts to those pointers mentioned in the book.
Well done.
Christine
Maxthevir | Nov 3, 2009 | Reply
Not everybody can understand our pain at times. But writing articles like this really helps.
Best wishes!
lillyrose | Nov 3, 2009 | Reply
Sweetheart I have MS too and I loved your article, it is a silent disability and I must admit I get fed up with people telling me I look so well, I am well I just don’t work properly!
If you would like to read my experience of finding out and what I did about it in those few years please read my story “Going Solo”
I was on beta ferron injections until January when I came down with a really bad clinical depression and had to stop the medication. But together we will fight this stupid disease, take care and email me if you want xxxxxx
Idazalee | Nov 3, 2009 | Reply
well-researched and very informative article..thanks for sharing.
cutedrishti8 | Nov 3, 2009 | Reply
thanks for sharing this nice informative article
cebuanaeyez | Nov 3, 2009 | Reply
I am profound by your article. Thank you for sharing this!
CA Johnson | Nov 3, 2009 | Reply
Thank you for sharing this with us. I am so sorry that you are battling this disease. I think there should be more information about the disease out there so that we can all become more aware of it and how it affects the people who are suffering with the disease. I hope that one day there is a cure for it.
Alexiandria M Michaels | Nov 4, 2009 | Reply
Thank you for sharing this with us. I hope one day there is a cure for this. I can not imagine what you are going through, this article opened my eyes, thank you for putting this information for others to see.
Atanacio | Nov 4, 2009 | Reply
this was a good healthmad feed thanks for sharing
BBKMarz | Nov 5, 2009 | Reply
Good information. Thank you for sharing!!
Annashank | Nov 8, 2009 | Reply
Thank you for sharing this, I learnt alot!!!
Katien | Nov 9, 2009 | Reply
I was diagnosed with ‘MS or something similar’ over 10 years ago. I think the most important way of coping with it is to accept your limitations and don’t be angry about it. It would be jolly nice if they could find a cure though!
bobbyt | Nov 10, 2009 | Reply
How do you manage it?