Fibromyalgia can be devastating. Especially if you’re a teen.
*Author’s note: This article has taken on a life of it’s own. Many have used it to voice their own concerns regarding themselves or their child and frustrations with the medical system. There is hope! Working together hopefully we can help others. Please read the comments as well and feel free to leave your own story.*
Picture of Nicholas at the Aquarium
My son Nicholas was diagnosed with Fibromyalgia two years ago when he was fourteen. Looking back I can honestly say he was exhibiting symptoms since he was eight. Nicholas was always my “healthy child” his younger brother had severe asthma since he was an infant.
He mostly complained about stomach and back pain. His chief complaints: my stomach hurts, my side hurts (left side). So we went to the doctor again and again and again. We saw lots of doctors pediatricians, urologist, gastroenterolgist, nephrologists, orthopedics, psychiatrists, psychologists. You name it. They did tests urine, blood, x-rays, ultrasounds, catscans.
He ended up in Children’s Hospital for a week on morphine when they found a kidney stone. According to the doctors a stone too small to be causing him any pain. So what was causing the pain? They didn’t know. So went through phases. He would double over in pain and I would take him to the doctor and nothing. He’s fine. There’s nothing wrong.
He missed lots of school so then he was making it up to miss school. He was depressed. I was depressed. Some gave him drugs. Percocet, darvocet, Tylenol 3 with codeine. They helped sometimes a little. Mostly they would knock him out. We had a teacher come out to the house. It is very difficult to get a Dr. to write an excuse when they don’t know what is wrong. Eventually we ended up Homeschooling. And the pain still continued . So much for the hates school theory!
We switched Doctors again and again and again. I looked online. I talked to everybody, anybody who would listen to me. There is something wrong with my child! He had pain off and on, he had frequent low grade fevers, he couldn’t sleep at night, he was lethargic, he didn’t want to leave the house, he was depressed, he had to stop playing baseball because his feet hurt when he ran, he dropped out of Boy Scouts. And no one listened. No one cared.